When Beth Papanastasiou's daughter Bella was born, she was diagnosed with a rare degenerative genetic disorder and given 18 months to live.In tonight's emotional Brief But Spectacular, we meet mother and daughter four years into their journey,a journey on which Papanastasiou says palliative care is key to making the most of her daughter Bella's life.My daughter Bella is 4-and-a-half years old now. About seven hours after she was born, she was transferred to Children's National.After about two weeks in the NICU, they informed us that Bella had a very rare genetic disorder called Pontocerebellar hypoplasia, type 6.And at that time, only about 12 cases had been reported in the world.And they did let us know that, in most of those cases, the children did not live past infancy. And that was truly the start of our journey and our life with Bella.When we first brought her home, every day, I felt like, well, today could be the day that we lose her.The PANDA team at Children's National is the palliative care team that works with families who have children with terminal conditions or other very serious conditions.They have been through it, and they have been through it with other families.The hardest decisions that we make with the palliative care team are deciding at what point Bella is still fighting to be with us and at what point do we know that Bella is tired?