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A combination of an underdeveloped palliative care system,
lawsuit fears and limited resources means China's terminally ill patients are largely being left to a slow, often painful end to their suffering.
Chen Xiaolu and Luo Diandian, children of celebrated senior Communist Party members Chen Yi and Luo Ruiqing,
watched their parents die in unnecessary pain, due to political norms decreeing the officials were to be kept alive as long as possible.
In recent years, they have led the first awareness movements for the concept of dying with dignity,
founding the Beijing Living Will Promotion Association in 2013 to advocate palliative care.
Palliative care is a variation of end-of-life care that focuses on providing relief from symptoms and helping families cope through the illness and bereavement process.
Palliative care is only just debuting in China.
Unlike the U.S., where use of palliative sedatives like morphine has been given guidelines, published by the U.S.-based National Comprehensive Cancer Network,
doctors in China do not have access to such guidelines.
In light of the already tense doctor-patient relationships,
many doctors would not dare to promote the remedy due to fear of the potential legal and professional consequences.
Resources for community health care or in-home hospice care are even scarcer.
Patients who cannot undergo further surgery,
由于中国相对较为落后的临终关怀政策,
人们害怕有限的资源将让那些生命垂危的病人陷入一个更加痛苦,缓慢的死亡过程。
陈小鲁和罗点点是老一辈革命家陈毅和罗瑞卿的孩子,父亲的死亡都经历了一些不必要的伤痛,
由于政治原因,人们必须要尽可能的留住他们的生命。
最近几年,他们刚开始意识到了什么叫作有尊严的死亡,
以至于他们在2013年成立了北京生前预嘱推广协会,从而来促进临终关怀。
临终关怀是一种生命晚期的治疗手段,这种治疗方式注重的是减缓病人痛苦,并帮助家人处理好善后事宜。
这样的临终关怀在中国才刚刚开始。
不像美国,根据美国国家综合癌症网络所发表的文章,人们可以使用像吗啡等镇定剂,这也是一项指导方针,
而在中国却没有相关的方针政策。
就紧张的医患关系而言,
许多医生不敢实施这样的治疗,这是因为他们害怕牵扯到法律纠纷之中。
对于社区医疗中心以及家庭临终关怀的资源更是非常稀缺。
病人无法进行进一步的手术,
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